United States Department of Veterans Affairs
 Resources & Education for Stroke Caregivers' Understanding & Empowerment

RESCUE Lifepreserver Fact Sheet Masthead Logo

RESCUE Home



Resources by Category

The following is a list of all of the resources from the RESCUE fact sheets. Resources are arranged by category. If preferred, view these resources listed in alphabetical order.

Assistive Devices & Technology

Legal Help

Benefits & Insurance

Long-Distance Caregiving

Bladder & Bowel Problems

Long-Term Care

Caregiving

Medicines

Community Resources

Pain

Depression

Rehabilitation

Driving & Transportation

Respite Care

Emotional & Behavioral Changes

Sex & Intimacy

End of Life Care

Spasticity & Movement

Falls

Sleep

Fatigue or Feeling Tired

Social Support

Financial Help

Speech & Communication

Finding Good Health Information

Stress

Healthcare Supplies

Stroke

Healthy Living

Swallowing Problems

Home Modification

Thinking & Memory Problems



Assistive Devices & Technology

AbleData
Web: www.abledata.com*
Phone: 1-800-227-0216

AbleData is a Web site that provides information about assistive technology products*.

 

Adaptive Information Resource Center
Web: www.adaptiveirc.org*
E-mail: info@adaptiveirc.org*

The Adaptive Information Resource Center provides information on adaptive sports and recreation options for people with disabilities. You can search for programs by state, find resources on traveling, and look for specific sports programs.

 

Center for Assistive Technology & Environmental Access
Web: www.assistivetech.net*
Phone: 1-800-726-9119

The Center for Assistive Technology & Environmental Access provides information on assistive devices and aids.

 

Family Caregiver Alliance
Web: www.caregiver.org*
Phone: 1-800-445-8106

The Family Caregiver Alliance provides information on Assistive Technology*.



Benefits & Insurance

Department of Veterans Affairs
Web: www.va.gov

The VA Health Benefits Service Center provides information on VA health benefits and the types of care available to Veterans. If you are new to the VA, the Federal Benefits for Veterans, Dependents and
Survivors
booklet will help you get started. Also available in Spanish.

Some states have special programs for Veterans. Your local VA Medical Center may offer and pay for adult day healthcare programs and long-term housing. Talk to a social worker for more information about these benefits.

 

Family and Medical Leave Act (FMLA)
Web: www.dol.gov/whd/fmla*

The Family and Medical Leave Act (FMLA) requires some employers to allow up to 12 weeks of unpaid leave. Some states have laws that expand leave.

 

Medicaid
Web: www.cms.hhs.gov/home/medicaid.asp*

Medicaid is a program that provides health coverage for lower income and disabled people. Benefits will vary by state. Benefits may include assistive devices, such as wheelchairs and scooters. Certain medical criteria must be met.

 

Medicare
Web: www.medicare.gov*
Phone: 1-800-633-4227

Medicare is a program that provides health coverage for people age 65 or older.

The Centers for Medicare and Medicaid Services gives comparisons of nursing homes in your area*. On that same page, you can also download a tip sheet on what to look for when visiting a nursing home. View their Nursing Home Checklist.*

There is also a comparison of home health agencies in your area*.

 

National Council on Aging, BenefitsCheckUp
Web: www.benefitscheckup.org*

The National Council on Aging, BenefitsCheckUp has an online questionnaire to check programs your loved one is eligible for*.



Bladder & Bowel Problems

American Urological Association Foundation
Web: www.urologyhealth.org*
Phone: 1-800-828-7866

The American Urological Association Foundation has information about incontinence*.

 

Internet Stroke Center
Web: www.strokecenter.org/patients*
Phone: 1-314-362-3868

The Internet Stroke Center has information on how to talk with your loved one about incontinence.*

 

Mayo Clinic
Web: mayoclinic.com*

The Mayo Clinic has information for women on how to strengthen the pelvic floor muscles*. The exercises to strengthen these muscles are called Kegel exercises.

 

National Stroke Association (NSA)
Web: www.stroke.org*
Phone: 1-800-787-6537

The National Stroke Association has information on Recovery After Stroke: Bladder & Bowel Function*

 

Strength for Caring
Web: www.strengthforcaring.com*
Phone: 1-866-466-3458

Strength for Caring has information for caregivers on Bladder & Bowel Problems*



Caregiving

American Geriatrics Society Foundation for Health in Aging
Web: www.healthinaging.org*
Phone: 1-800-563-4916

The American Geriatrics Society (AGS) has a guide called “Eldercare at Home.*”
It is a step-by-step guide to caring for an older person at home. This guide is available free of charge on their Web site.

 

American Medical Association
Web: www.ama-assn.org*
Phone: 1-800-621-8335

The American Medical Association has a Caregiver Self-Assessment Questionnaire*.
This tool allows caregivers to look at their own behavior and health risks. Also available in Spanish.*

 

Care.com
Web: www.care.com*

Care.com is an on-line resource to help families find care or caregivers find jobs. They also have helpful articles and resources for caregivers. Read about Caring for Seniors with Mobility Problems: Advice for Families and Caregivers*.

 

Caregiver Library
Web: www.caregiverslibrary.org*
Phone: 1-804-327-1111

The Caregiver Library has several fact sheets on many topics dealing with stroke.

 

Family Caregiver Alliance
Web: www.caregiver.org*
Phone: 1-800-445-8106

The Family Caregiver Alliance provides information, education and services for caregivers. Read about the following topics below.

View their full list of fact sheets.* Some information also available in Spanish.

 

Internet Stroke Center
Web: www.strokecenter.org/patients*
Phone: 1-314-362-3868

The Internet Stroke Center has information for caregivers.*

 

My HealtheVet
Web: www.myhealth.va.gov

My HealtheVet has information on VA services, strokes and caregiving. Visit their Caregiver Assistance Center. Other My HealtheVet Healthy Living Centers have guides on eating well, exercising and taking medicine safely. It has tools to help track your progress and additional resources.

 

Stroke Association (United Kingdom)
Web: www.stroke.org.uk*

The United Kingdom Stroke Association has a guide called “Stroke: A Carer’s Guide*.” It deals with how caring for someone affects the caregiver and family.

Note: This Web site offers helpful information for caregivers, but some references may not apply to caregivers in the United States.



Community Resources

Administration on Aging
Web: www.aoa.gov*

The Administration on Aging connects you to federal, national and local programs.
These programs may help pay for some expenses. Learn more about these programs.*

 

Blue Pages
Web: www.officialusa.com/state/state.information/bluepages*

The Blue Pages has a directory of various state and local services, including links to local hospitals and medical facilities.

 

Catholic Charities
Web: www.catholiccharitiesusa.org*
Phone: 1-703-549-1390

Catholic Charities agencies serve people of all faiths. They provide a wide range of services such as housing, emergency services and health care. Find your local Catholic Charities Organization.*

 

Eldercare Locator, Area Agency on Aging (AAA)
Web: www.eldercare.gov*
Phone: 1-800-677-1116

The Eldercare Locator helps you find your local Area Agency on Aging (AAA). Your local AAA can help you find community-based services like transportation, respite care, legal help and caregiver support services.

 

Faith in Action
Web: www.fianationalnetwork.org*

Faith in Action brings together people of many faiths to help their neighbors in need. Volunteers shop, cook or just check in. Find a program in your area.*

 

Meals-on-Wheels Association of America
Web: www.mowaa.org*
Phone: 1-703-548-5558

See if your area has a Meals-on-Wheels service* that delivers food to the home. Enter the city and state you live in. The Web site will show if local agencies offer meal programs in your area.

 

National Association of Area Agencies on Aging
Web: www.n4a.org*
Phone: 1-202-872-0888

The National Association of Area Agencies on Aging is a national site that helps you find local services and ways to pay for care.

 

National Association of Professional Geriatric Care Managers (NAPGCM)
Web: www.caremanager.org*
Phone: 1-520-881-8008

The National Association of Professional Geriatric Care Managers can help you find a certified care manager. Find a care manager near you.*

 

National Resource Directory
Web: www.nationalresourcedirectory.org*
Phone: 1-800-342-9647

The National Resource Directory provides information on and access to resources for Veterans and their families. The directory includes a full range of medical and nonmedical services and resources.

 

United Way
Web: www.liveunited.org*
Phone: 1-703-836-7112

The United Way links you to a variety of community resources. Find your local agency.



Depression

My HealtheVet
Web: www.myhealth.va.gov

My HealtheVet has a screening test you can take for symptoms of depression.

 

NYU Langone Medical Center/NYU School of Medicine, Department of Psychiatry
Web: psych.med.nyu.edu*
Phone: 1-212-263-6216

NYU Langone Medical Center/NYU School of Medicine, Department of Psychiatry has information on depression and an on-line depression screening test*.



Driving & Transportation

AARP (American Association of Retired Persons)
Web: www.aarp.org*
Phone: 1-888-687-2277

AARP offers driver safety classes both in the classroom and on-line. Find a class in your area.*

 

American Geriatrics Society Foundation for Health in Aging
Web: www.healthinaging.org*
Phone: 1-800-563-4916

The American Geriatrics Society (AGS) has a list of warning signs of unsafe driving*.

 

Disabled American Veterans
Web: www.dav.org

Local service clubs, like the Disabled American Veterans (DAV), sometimes have transportation programs. They may also have volunteer drivers. Get more information on their transportation program.*

 

Eldercare Locator, Area Agency on Aging (AAA)
Web: www.eldercare.gov*
Phone: 1-800-677-1116

The Eldercare Locator has a fact sheet on alternative transportation options for your loved one*.



Emotional & Behavioral Changes

American Stroke Association
Web: www.strokeassociation.org*
Phone: 1-888-478-7653

The American Stroke Association has fact sheets to help with caring for emotional and behavioral conditions after stroke.*

 

Caregiver Library
Web: www.caregiverslibrary.org*
Phone: 1-804-327-1111

The Caregiver Library has several fact sheets on emotional issues after stroke*.

 

Caring.com
Web: www.caring.com*

Caring.com has helpful tips on how to deal with difficult behaviors*, including using distractions and soothing techniques.

 

Family Caregiver Alliance
Web: www.caregiver.org*
Phone: 1-800-445-8106

The Family Caregiver Alliance provides information about coping with behavioral problems after head injury*.

The Family Caregiver Alliance also has a fact sheet for caregivers on how to deal with trouble behavior*. Although it addresses dementia, the helpful tips can be applied to caring for stroke survivors as well.

 

National Stroke Association
Web: www.stroke.org*
Phone: 1-800-787-6537

The National Stroke Association has information on Recovery After Stroke: Coping With Emotions*.



End of Life Care

Caring Connections
Web: www.caringinfo.org*
Phone: 1-800-658-8898

Caring Connections is a program of the National Hospice and Palliative Care Organization. Download brochures on end of life care issues*.

 

Hospice Foundation of America
Web: www.hospicefoundation.org*
Phone: 1-800-854-3402

Hospice Foundation of America has information on how to get hospice care. It describes available resources for end of life care needs.

 

National Caregivers Library
Web: www.caregiverslibrary.org*

The National Caregivers Library has information for caregivers end of life care*.

 

National Hospice and Palliative Care Organization (NHPCO)
Web: www.nhpco.org*
Phone: 1-800-658-8898

The National Hospice and Palliative Care Organization has information to help with end of life issues*.



Falls

Fall Prevention Center of Excellence
Web: www.stopfalls.org*
Phone: 1-213-740-1364

The Fall Prevention Center of Excellence has tips on ways to prevent falls both at home and in the community. Get more information on fall prevention.*



Fatigue or Feeling Tired

American Stroke Association
Web: www.strokeassociation.org*
Phone: 1-888-478-7653

The American Stroke Association has a fact sheet, Let’s Talk About Feeling Tired After Stroke*.

 

National Stroke Association
Web: www.stroke.org*
Phone: 1-800-787-6537

The National Stroke Association has information on Recovery After Stroke: Managing Fatigue*.



Financial Help

American Association of Daily Money Managers (AADMM)
Web: www.aadmm.com*
Phone: 1-877-326-5991

The American Association of Daily Money Managers is a membership organization that provides daily money management services to their clients. Find a DMM in your area.*

 

Caregiver Library
Web: www.caregiverslibrary.org*
Phone: 1-804-327-1111

The Caregiver Library has several fact sheets dealing with financial issues*.

 

Live Strong
Web: www.livestrong.org*

Live Strong is an online service of the Lance Armstrong Foundation. The foundation is devoted to cancer patients and survivors. It offers good finance organizing forms anyone can use.

 

Mymoney.gov
Web: www.mymoney.gov*

Mymoney.gov is the US government’s financial education site. It provides important information on various financial topics.

 

Social Security Administration
Web: www.ssa.gov*

The Social Security Administration may help with funding. Find a Social Security Office near you.*

The Social Security Administration has information on Supplemental Security Income (SSI)*. SSI is income in addition to Social Security for low-income persons.



Finding Good Health Information

Agency for Healthcare Research and Quality (AHRQ)
Web: www.ahrq.gov*
Phone: 1-301-427-1104

The Agency for Healthcare Research and Quality has easy to understand advice columns to help navigate the healthcare system. Click on “Consumers and Patients” for information on choosing quality care*, getting safer care* and staying healthy*.

Also read about 20 Tips to Help Prevent Medical Errors*.

 

Health.gov
Web: www.health.gov*

Health.gov is a portal to other government health sites. It also has a list of the most recent toll-free numbers for various health organizations.

 

MedlinePlus
Web: www.nlm.nih.gov/medlineplus*

MedlinePlus provides trusted health information on many topics. It will direct you to information on many health topics including erectile dysfunction, mobility aids and catheters.

MedlinePlus has guides on finding reliable health information on the internet. Information also available in Spanish.

 

National Institute on Aging (NIA)
Web: www.nia.nih.gov*
Phone: 1-800-222-4225

The National Institute on Aging has guides on obtaining good healthcare and information. Information also available in Spanish.



Healthcare Supplies

Caregiverproducts.com
Web: www.caregiverproducts.com*
Phone: 1-877-750-0376

Caregiverproducts.com is an on-line healthcare products store.

 

Med Supply Guide
Web: www.themedsupplyguide.com*
E-mail: support@themedsupplyguide.com*

The Med Supply Guide has more information about wheelchairs*.

 

Sammons Preston
Web: www.pattersonmedical.com*
Phone: 1-800-323-5547

Sammons Preston is an on-line healthcare products store.



Healthy Living

American Heart Association
Web: www.heart.org*
Phone: 1-800-242-8721

The American Heart Association provides information and helpful tips on how to stop smoking*. Smoking increases your risk of another stroke, so quitting is important.

 

Healthfinder
Web: www.healthfinder.gov*
E-mail: healthfinder@nhic.org*

Healthfinder also has helpful tools such as a health encyclopedia and quick guides to healthy living. Information also available in Spanish.

 

MOVE! Weight Management Program
Web: www.move.va.gov

The Move! Weight Management Program is a VA diet and exercise program to help Veterans improve their health. To make the program more tailored to your needs, take the MOVE! 23 questionnaire.

There are also handouts on nutrition, exercise and emotional health. Information is also available in Spanish.

 

MyPyramid.gov
Web: www.mypyramid.gov*
Phone: 1-888-779-7264

MyPyramid.gov has interactive tools to help you plan a balanced, healthy diet. They have information on the different food groups and tips to help you pick foods that are healthy.

 

National Heart, Lung, and Blood Institute
Web: www.nhlbi.nih.gov*
Phone: 1-301-592-8573

Dietary Approaches to Stop Hypertension (DASH) is a diet used by the National Heart, Lung, and Blood Institute to help prevent or reduce high blood pressure. Read the following guide: “Your Guide to Lowering Your Blood Pressure with Dash.*”

 

National Institutes of Health (NIH)
Web: www.health.nih.gov*
Phone: 1-301-496-4000

The National Institutes of Health has a caregiver guide to dental care*.

 

National Stroke Association
Web: www.stroke.org*
Phone: 1-800-787-6537

The National Stroke Association has a guide called “HOPE: The Stroke Recovery Guide.*” Chapter four is on movement and exercise. This chapter gives an exercise program for stroke survivors who are affected either mildly or moderately by stroke.

 

Senior Planning Services
Web: www.seniorplanningservices.com*
Phone: 1-805-966-3312

The Senior Planning Services has more information about exercise*, including a fact sheet on exercises to do at home.

 

Stroke Association (United Kingdom)
Web: www.stroke.org.uk*

The United Kingdom Stroke Association has tips on healthy eating and exercise*.

Note: This Web site offers helpful information for caregivers, but some references may not apply to caregivers in the United States.



Home Modification

Department of Housing and Urban Development
Web: www.hud.gov*

The U.S. Department of Housing and Urban Development may help with funding for home modification projects. Find your local Housing and Urban Development office.*

 

Department of Veterans Affairs
Web: www.va.gov

The VA has some funding for home modification projects through its Home Loans program.

 

Home Safety Council
Web: mysafehome.net*
Phone: 1-888-556-9947

The Home Safety Council has an interactive tool that allows you to view areas of risk in the home. It offers fall and injury prevention tips to help make your home safer.

 

Internet Stroke Center
Web: www.strokecenter.org/patients*
Phone: 1-314-362-3868

The Internet Stroke Center has tips on changes that may need to be made to the home after a stroke.*

 

National Resource Center on Supportive Housing and Home Modification
Web: www.homemods.org
Phone: 1-213-740-1364

The National Resource Center on Supportive Housing and Home Modification has a large list of companies with products to make daily living easier*.

 

NeighborWorks Network
Web: www.nw.org*
Phone: 1-202-220-2300

The NeighborWorks Network and other non-profit and volunteer groups may pay for some home changes. Find a NeighborWorks organization near you.*

 

Rebuilding Together
Web: www.rebuildingtogether.org*
Phone: 1-800-473-4229

Rebuilding Together and other non-profit and volunteer groups may pay for some home changes. Find your local group.*



Legal Help

American Bar Association
Web: www.abanet.org*

Your state’s Bar Association may have basic living wills, trusts and power of attorney forms you can download. Find your state’s Bar Association.*

The American Bar Association – Commission on Law and Aging has legal tools* for making sure your wishes are carried out.

 

Caring.com
Web: www.caring.com*

Caring.com has information on advance health care directives*. It includes a step-by-step guide on how to set up an advance directive. They also have expert advice on wills*. It explains what a will is and how to set up and update one.

 

Disability Lawyers.com
Web: www.disabilitylawyers.com*

Disability Lawyers.com is an on-line nationwide disability lawyer directory.

 

Federal Trade Commission
Web: www.ftccomplaintassistant.gov*

Report false or misleading health information to the Federal Trade Commission. Information also available in Spanish.

 

National Academy of Elder Law Attorneys
Web: www.naela.org/public
Phone: 1-703-942-5711

The National Academy of Elder Law Attorneys provides education and support on financial issues. They have brochures on Medicare and planning for health care decision making. See a list of their brochures.*



Long-Distance Caregiving

AARP (American Association of Retired Persons)
Web: www.aarp.org*
Phone: 1-888-687-2277

AARP has helpful information for working and long-distance caregivers.

 

Family Caregiver Alliance
Web: www.caregiver.org*
Phone: 1-800-445-8106

The Family Caregiver Alliance has a handbook for long-distance caregivers*

 

National Institute on Aging (NIA)
Web: www.nia.nih.gov*
Phone: 1-800-222-4225

The National Institute on Aging has a publication for caregivers called “So Far Away: Twenty Questions for Long-Distance Caregivers.*” It offers answers to 20 commonly asked questions long-distance caregivers have.



Long-Term Care

Connecting for Care
Web: www.thefamilycaregiver.org*
Phone: 1-800-896-3650

Connecting for Care provides resources and support for caregivers, including Choosing a Nursing Home, A Caregiver’s Guide*.

 

Medicare
Web: www.medicare.gov*
Phone: 1-800-633-4227

The Centers for Medicare and Medicaid Services gives comparisons of nursing homes in your area*. On that same page, you can also download a tip sheet on what to look for when visiting a nursing home. View their Nursing Home Checklist.*

There is also a comparison of home health agencies in your area*.

 

National Caregivers Library
Web: www.caregiverslibrary.org*

The National Caregivers Library has helpful information about long-term care choices*

 

National Center for Assisted Living
Web: www.ahcancal.org/ncal*
Phone: 1-202-842-4444

The National Center for Assisted Living has information on assisted living facilities in your area*.

 

National Family Caregivers Association
Web: www.nfcacares.org*
Phone: 1-800-896-3650

The National Family Caregivers Association provides information on caregiver resources. Learn about choosing nursing homes and how to find home healthcare. Find caregiver support groups and services.



Medicines

AARP (American Association of Retired Persons)
Web: www.aarp.org*
Phone: 1-888-687-2277

AARP has helpful health tools* such as a pill identifier, a drug interaction checker and more.

 

Caregiver Library
Web: www.caregiverslibrary.org*
Phone: 1-804-327-1111

The Caregiver Library has several fact sheets on managing medicines and pain*.

 

Eldercare Online Network
Web: www.ec-online.net*
Email: prisminnovations@gmail.com*

The Eldercare Online Network has a resource guide on working with your pharmacist, taking medicines safely and storing medicines*.

 

Healthfinder
Web: www.healthfinder.gov*
E-mail: healthfinder@nhic.org*

Healthfinder has information on finding prescription drug assistance* through the Partnership for Prescription Assistance.

 

National Council on Aging: Center for Healthy Aging
Web: www.healthyagingprograms.org*
Phone: 1-202-479-1200

The Center for Healthy Aging has several fact sheets and tools on managing medicines. View their list of fact sheets.*



Pain

American Pain Foundation
Web: www.painfoundation.org*
Phone: 1-888-615-7246

The American Pain Foundation has a tool called the Pain Resource Locator* to provide you with information, support and resources to manage your pain.

 

National Stroke Association
Web: www.stroke.org*
Phone: 1-800-787-6537

The National Stroke Association has information on Recovery After Stroke: Dealing with Pain*,



Rehabilitation

Commission on Accreditation of Rehabilitation Facilities (CARF)
Web: www.carf.org/public*
Phone: 1-520-325-1044

The Commission on Accreditation of Rehabilitation Facilities (CARF) accredits or gives a “seal of approval” to rehab facilities. Look for the CARF certificate of accreditation at the facilities you visit. Find an accredited facility near you.*



Respite Care

ARCH National Respite Network
Web: chtop.org/ARCH.html*
Phone: 1-919-490-5577

ARCH National Respite Network has a database on respite care services available in your area*.

 

National Adult Day Services Association
Web: www.nadsa.org*
Phone: 1-877-745-1440

The National Adult Day Services Association can help you find services in your area. They have an informative guide on respite services*.



Sex & Intimacy

American Stroke Association
Web: www.strokeassociation.org*
Phone: 1-888-478-7653

The American Stroke Association has a brochure on sex after stroke. To order, go to Sex After Stroke: Our Guide to Intimacy After Stroke*

 

Heart & Stroke Tayside (United Kingdom)
Web: www.heartstroketayside.org.uk*

Heart & Stroke Tayside has helpful information about Sex After Stroke Illness*.

Note: This Web site offers helpful information for caregivers, but some references may not apply to caregivers in the United States.



Spasticity & Movement

American Stroke Association
Web: www.strokeassociation.org*
Phone: 1-888-478-7653

The American Stroke Association has information about stroke-related physical problems.

 

Release Your Potential
Web: www.releaseyourpotential.com*

Release Your Potential is an on-line community for people affected by spasticity. It provides information on spasticity along with various treatments and resources.



Sleep

My HealtheVet
Web: www.myhealth.va.gov

My HealtheVet has information on aging and sleep. You can find a test to measure your insomnia severity index. There is a sample diary to track your daily sleep patterns.

 

National Sleep Foundation
Web: www.sleepfoundation.org*
Phone: 1-202-347-3471

The National Sleep Foundation has tools to assess satisfaction with sleep. You can find a tool to measure the amount of caffeine in food and drinks. You can find a diary to keep track of sleepiness. There is a tool to determine your loved one’s snore score. You can also find information about sleep myths.

 

NIH Senior Health
Web: nihseniorhealth.gov*
Email: custserv@nlm.nih.gov*

NIH Senior Health has quizzes to increase your knowledge of sleep and aging. You can learn about changes in sleep patterns as people get older. You can find treatments for sleep disorders like sleep apnea and restless leg syndrome.



Social Support

American Heart Association
Web: www.heart.org*
Phone: 1-800-242-8721

The American Heart Association has free Family Discussion Boards*. You can share ideas and questions.

 

American Stroke Association (ASA)
Web: www.strokeassociation.org*
Phone: 1-888-478-7653

The American Stroke Association's The Stroke Family Warmline* connects stroke survivors and their families with an ASA member who can provide support, helpful information or just a listening ear.

 

Connecting for Care
Web: www.thefamilycaregiver.org*
Phone: 1-800-896-3650

Connecting for Care provides resources and support for caregivers. Read their fact sheets on:

 

National Family Caregivers Association
Web: www.nfcacares.org*
Phone: 1-800-896-3650

The National Family Caregivers Association can help locate caregiver support groups and services.

 

National Stroke Association
Web: www.stroke.org*
Phone: 1-800-787-6537

The National Stroke Association has a lot of information about stroke support groups*, including how to start your own stroke support group. They a link to a directory called the "Stroke Group Registry" to help you find a stroke support group near you. They also have information on starting your own support group.

 

Stroke Network
Web: www.strokenetwork.net*

The Stroke Network has links to support groups, chat rooms and bulletin boards.



Speech & Communication

American Speech-Language-Hearing Association
Web: www.asha.org*
Phone: 1-800-638-8255

The American Speech-Language-Hearing Association has information on communication problems after stroke. You can also search for licensed speech-language pathologists (including bilingual therapists) in your area*.

 

American Stroke Association
Web: www.strokeassociation.org*
Phone: 1-888-478-7653

The American Stroke Association has information about Communication and Swallowing Problems*

 

Aphasia Hope Foundation
Web: www.aphasiahope.org*

The Aphasia Hope Foundation has information for stroke survivors and caregivers.

 

Heart & Stroke Tayside (United Kingdom)
Web: www.heartstroketayside.org.uk*

Heart & Stroke Tayside has helpful information on Communication Problems Following Stroke: Aphasia*.

Note: This Web site offers helpful information for caregivers, but some references may not apply to caregivers in the United States.

 

National Institute on Deafness and Other Communication Disorders (NIDCD)
Web: www.nidcd.nih.gov*
Phone: 1-800-241-1044

The National Institute on Deafness and Other Communication Disorders (NIDCD) has information on various health conditions and treatments. It also has tips for caring for survivors with different communication problems.



Stress

Familydoctor.org
Web: familydoctor.org*

Familydoctor.org has information on ways to deal with stress*. Some information also available in Spanish.



Stroke

American Stroke Association
Web: www.strokeassociation.org*
Phone: 1-888-478-7653

The American Stroke Association provides information on many aspects of stroke. In their “About Stroke*” section, they have more information on the warning signs of stroke and ways to lower your risks. Their “Life After Stroke” section has information for family caregivers on life after stroke. It includes information on support groups, resources and products.

 

Heart & Stroke Tayside (United Kingdom)
Web: www.heartstroketayside.org.uk*

Heart & Stroke Tayside has helpful information for stroke survivors and caregivers.

Stroke: A Guide for Carers*

Note: This Web site offers helpful information for caregivers, but some references may not apply to caregivers in the United States.

 

Internet Stroke Center
Web: www.strokecenter.org/patients*
Phone: 1-314-362-3868

The Internet Stroke Center has detailed information on stroke, from diagnosis through treatment and rehabilitation.

 

National Stroke Association
Web: www.stroke.org*
Phone: 1-800-787-6537

The National Stroke Association has detailed information on stroke, from prevention to recovery.

 

NIH Senior Health
Web: nihseniorhealth.gov*
Email: custserv@nlm.nih.gov*

NIH Senior Health has information on stroke and eating well. See their list of stroke topics.*

 

Stroke Association (United Kingdom)
Web: www.stroke.org.uk*

The United Kingdom Stroke Association has an A-Z list of fact sheets on stroke-related topics*. This includes information on hemiplegia, balance problems and psychological effects of stroke.

Note: This Web site offers helpful information for caregivers, but some references may not apply to caregivers in the United States.

 

Stroke QUERI
Web: www.queri.research.va.gov/str
Phone: 1-317-988-3475

Stroke QUERI is a Department of Veterans Affairs site that provides Veterans and their families with information on stroke.



Swallowing Problems

Heart & Stroke Tayside (United Kingdom)
Web: www.heartstroketayside.org.uk*

Heart & Stroke Tayside has helpful information about Swallowing Problems After Stroke: Dysphagia*.

Note: This Web site offers helpful information for caregivers, but some references may not apply to caregivers in the United States.



Thinking & Memory Problems

Alzheimer’s Association
Web: www.alz.org*
Phone: 1-800-272-3900

The Alzheimer’s Association has practical tips to help with memory problems. For example, they suggest labeling drawers or cabinets with words or pictures that describe their contents.

 

American Stroke Association
Web: www.strokeassociation.org*
Phone: 1-888-478-7653

The American Stroke Association has a fact sheet called Simple Techniques Can Help Memory*

 

National Stroke Association
Web: www.stroke.org*
Phone: 1-800-787-6537

The National Stroke Association has information on Recovery After Stroke: Thinking and Cognition*.



*Link Disclaimer: Links to information and Web sites outside of the Department of Veterans Affairs do not indicate an endorsement of products or services offered by the sites. In addition, these sites may have privacy and security policies that are inconsistent with those of VA.

Download a free version of Adobe Reader* to view PDF files.



Alternate lifepreserver logo for the RESCUE Project
Logo for the Rehabilitation Outcomes Research Center - White head on a blue background with a blue brain containing 5 white and one red star

These materials were created for the project:

Web-Based Informational Materials for Caregivers of Veterans Post-Stroke

Project Number SDP 06-327 funded by VA HSR&D Quality Enhancement Research Initiative (QUERI); Supported by the
Stroke QUERI

Visit the Stroke QUERI Website